UC Patients from Derbyshire
“Personally, I think it is a fantastic system and was easy to do. I would be very happy to use it in the future. My only question was about the time, I think the instructions should say to leave at least for 2 hours and no more than 24 hours.”
“The kit was easy enough to use. I think with regular use it would become easier so thank you for letting me try it out. I liked the fact that I had the results within a few hours rather than waiting weeks and having to call the doctor for a result, this has lessened my anxiety.”
Basildon and Thurrock Crohn’s and Colitis Information Facebook Page
“This is the best thing ever, if you get the chance do it. Results in hours not weeks. It changed my life. Even if it feels weird, have a go. This type of technology can push the future of IBD to the next level.
Anyone who has had days on the loo waiting for a call or an answer will appreciated this technology. The same day your consultant can have the data they need to get you in hospital or change your meds straight away. Just do it.”
Basildon and Thurrock Crohn’s and Colitis Information Facebook Page
Jere et al, BMJ Open Gastroenterology, Volume 8, Issue 1
“My son gets very anxious at hospital so this kit is perfect to keep him happy”
“My daughter prefers it as it’s less messy, she’s in control and it’s a more private experience”
“It was easy, I feel more comfortable”
Point-of-care faecal calprotectin testing in patients with paediatric inflammatory bowel disease during the COVID-19 pandemic
IBD Patient’s Perspective
“I found the Kit and App user friendly and easy to follow. The Patient Support Website has good information both in video and the written form. The patient forum is also a great idea and can become an invaluable source for those new to using the test. Overall, I feel that there is an enormous benefit in using IBDoc for long term patients in the self management of their condition. Results can be seen straight away without the inconvenience of having to go to the hospital and then waiting for results to be sent and – treatment plans can be established more quickly. This has been particularly highlighted during the COVID-19 situation, when many patients would not want to travel to their hospital. Access to past results to look at trends is also important.”
Stephen Bonnington, Crohn’s Disease Patient
Vicky Munday, Ulcerative Colitis Patient
“I don’t think they could have made the test any easier to be honest – If you have been offered the chance to use the IBDoc just give it a go, taking the sample isn’t a big deal and the results come through really quickly which is all that matters.”
Lee Stanley, Long-term Sufferer of Crohn’s Disease
“The number one thing for me since beginning the IBDoc trial is that I have found that my anxiety levels have dramatically decreased. It has also reduced the “waiting time” for results down to hours instead of days or weeks. This means I’m not constantly second guessing or monitoring how I feel, which I find mentally exhausting.
I believe what IBDoc has allowed me to do over the course of the last year is fundamentally educate myself in understanding my disease state.
Having Crohn’s disease for twenty-seven years has taught me many things; fundamentally that patients need to self manage and IBDoc is one powerful tool in my self-managing tool kit. I wasn’t expecting IBDoc to provide me with the answers to everything; using IBDoc I haven’t suddenly found a miraculous cure, I’m still searching for the “perfect” diet and optimised plan. However, I believe IBDoc has contributed significantly to both the physical and mental aspects for the management of my disease.”
Norwegian Study
“All who are motivated and interested should be offered IBDoc®. Great to test at home. Easier to perform than regular disease activity monitoring.”
Participant, Age 36
“Was a little unsure at first, but it was a very positive experience. I am now very positive to IBDoc®.”
Participant, Age 40
Patient Blog: IBDoc® and Me
Having struggled with his disease for the last 25 years, Lee Stanley hoped that being able to use the IBDoc would help him to self manage the condition whilst expanding his extremely limited diet. After all, there is only so much chicken, carrot and rice that one person can take!
However, at the time there were no clinics offering IBDoc that Lee could access. Now that Lee has gained access to the IBDoc, he is doing a blog to chart his experience.
Join Lee on his journey and see how he gets on performing his own calprotectin tests.
